The war zone

Okay people.   get ready.



Heres the picture from his revision just a couple days ago.  It looks much better than the original surgery.

okay  so this post im just gonna tell you whats what.  more details will come.  but like i said i have some 7 months of catching up to do.

The first "hole" is where is belly button was. This one is his MACE STOMA.  the fist week i kept getting the names of them confused. a nurse told me she remembers this was MACE    C- COLON OR E- ENEMA     so the MACE stoma is where we flush his bowels.  The reason this works so well is that the water flushes from the top of his intenstines and gets all the poop out top to bottom...as opposed to a cone enema that goes from botom and never ever reaches the top.

The whole towards the bottom of the picture with a small tube coming out is his MONTI STOMA.  His monti stoma is where we get the urine out of. Our doctor puts it high enough where he just barely has to fold down the top of his pants to cath. I cant tell you how amazing this is.  No pulling pants down. No awkwardness if someone needs to help him. He gets privacy and dignity and still gets the pee out.   He also gets independence.  He doesnt have to sit down on the potty if he doesnt want to and he doesnt have to transfer out of his wheelchair if he doesnt want to.Its pretty genuis.


The reason the tube is still there is that after surgery our doctor keeps the tubes in for 3 weeks. attached to it is a bag and that gets all the urine out constantly. It gives the bladder time to heal.

Towards the top of the picture you will see another hole with a tube. This is called the super pubic tube or catheter.  Again this is helping the bladder to heal and drain. This also stays in three weeks.

(Ill post more about the bags and how its really not near as scary and overwhelming as you may think)

He also had a hole for his PAIN BALL.  Ask for this. Beg for this. Its awesome. Pain meds shooting straight to the surgery site. This kid has been in very very very little pain.  We love it. considering his stomach looks like a war zone we really like the pain ball.

He also had another ball tube thing (im very scientific) that drained blood.  This completely grossed him out.  Not sure why with everything else but a little clear ball with some blood in it was almost his undoing.  just hide it. no biggie.

Okay any questions you might have feel free to comment or message me. It helps me know what to hit on and what is making sense.  I will go into a lot more details with each post.